So much to share!!

Hello everyone!  I have so many things to share and don't know where to start!  I've become obsessed with instagram and twitter and have been posting there...

I'll start with the most important - Matthew!  We have a diagnosis!  Multi-focal neuropothy with conduction block causing demyelination of his nerves (if I said that right).  Basically, it's an auto immune disorder that is NOT genetic but they do not know the cause of it.  The good news is, the IVIG infusions have been working and he is 90% back to normal leg usage!!!  All degenerative diseases  have been ruled out!!  He will continue to need the infusions and their hope is that over time, they can spread out how often he receives them to hopefully one day weaning him from them.  So, HURRAHS!!!

I am having good and bad days, need to now go to a GI dr but have been putting off making the appointment... I know, shame on me but I'm so overwhelmed I just can't think of it right now... I did finally do the sleep study - it wasn't too bad and have to call next week to schedule an appointment to go over the results.  All I know is that there were no signs of sleep apnea, but a lot of sleep disturbances.  Well, I could have told them that - I know I wake up all night...hopefully, they can tell me why.

My new obsession - the TV show "Amish Mafia!"  Yes, I know it's not all real, but I really am addicted and got my sister-in-law into it too.  I would love to live on one of those big farms, take care of the animals and craft all day long...  speaking of crafts, I am back to knitting - yay!  I'm making fingerless mitts and also decided that is time I learn to cross stitch/embroider so I can make a table cloth that my grandmother had bought and never did.  It took a long time for me to look at it without crying, but all this Amish stuff got me into wanting to do it.  So, my friend Jen, aka calophi had her mom show me a kit to learn on and I am doing it!! I have lots of pics to share - so here goes - some knitting, some cross stitch and some of my silly puppy Zoey who not only sleeps in the weirdest positions, but has learned how to turn on the electric blanket and get comfy...  enjoy!!!!



 My mitt, which can be found on the free pattern page.


 Cross Stitch - my new obsession!!


 Zoey sleeps in the weirdest positions!


 Yes, she does turn on the electric blanket!!  Silly girl!!!

Knitting again!! I hope...

So, a friend came to me with yarn that she bought to make a scarf and just could not knit with it.  I told her I'd make the scarf for her, but that it may take a while with all of my health issues but I would do my best.  I did finally complete it and gave it to her.  Of course, I was so excited it was done and to get it to her that I didn't take a picture of it... I did, however, take some pics of my secret (or not so secret anymore) yarn thief.  Yes, my dear sweet, innocent baby girl is not so innocent after all... so, without further ado, her is my love, my heart, my Zoey; stealing my yarn:






Silly, silly girl!!!  What else can I possibly say???

My newest obsession - the Amish Mafia TV show.  Yes, I know reality shows are really fake - but I am so fascinated with the Amish lifestyle (imagine all the spinning, knitting and sewing they do) and just can't help but be intrigued!!  I even got my husband and my sister-in-law hooked!!!

As for our health report, Matt is having another test done on Thursday and then we are back to the neurologist on Tuesday to get a report. Hopefully we will have a diagnosis and game plan.  He is responding well to the IVIG Infusions though, which is a good sign.

My Savella has been increased and I am feeling better although this cold weather does me in, but at least I'm not in constant pain - fibro under control!!!  Yay!!!  Until next time, I shall try to keep knitting!