Friday, November 2, 2012
As some of you may know, my son has been going through some physical issues with his legs. The Doctors still are not sure what is wrong - he now has three Neurologists keeping tabs on him. We are hoping it's this conduction block neuropathy which is what they are leaning towards and have been treating him with IVIG infusions. We are on the second round of it now. He gets them every four weeks for three days. We won't know until January if they are helping but he says he feels stronger and hasn't fallen down since the first round last month so that is a great thing! Yesterday he had his six hour infusion and then had FOUR MRI's done - closed mri tube for two hours!!! He amazes me...no way could I do that - he is so brave.... Luckily he is not missing school work this week - Sandy devastated our area and schools have been closed all week. We were fortunate - no power for 44 hours and finally got tv, internet and phone service back on yesterday. A lot of people in towns nearby still have no power... really makes you appreciate things... we had to push back his IVIG infusions because they didn't have power either... crazy... but we're somewhat back to normal now... anyway, just thought I'd throw a post out since I haven't posted all month. I still can only knit a few rows at a time but the Dr just upped one of my meds so hopefully that will help my hands and I'll be able to get back to knitting!! Happy November!