Can anyone translate medical speak??? I'm having difficulty getting my bone scan results. Apparently they wrote up my right leg instead of my left. Personally, I'm thinking whoever transcribed just wrote "right" instead of "left" but either way I don't understand this and the Dr is trying to get info on my left leg/foot before explaining to me. However, I have it on my patient portal. I can send a better image if someone would like to translate, please DM me your email and I'll send it. Thank you in advance!!!! #spoonie #RSD #CRPS #needhelp
Tuesday, March 31, 2015
New Instagram Photo: March 31, 2015 at 03:20PM
In following @keepshiningkeepsmiling 's footsteps, I'd like to give a shoutout to @dinkyspoon85 She's an amazingly strong #spooniesister who has survived through more than anyone her age should have to. She has her own YouTube channel and talks about everything from chronic diseases to makeup!! She's sweet and kind and deserves a follow!! #SpreadSomeSunshine #spoonie #spooniesister #spooniestrong #spooniecommunity
New Instagram Photo: March 31, 2015 at 02:41PM
I'm making a gift for a #spooniesister who's on IG so I won't be able to post pics until she gets it. Here's the start though!! My #needleminder is from @wintonjunction and today is the last day of their Spring sale if you need one!! #crossstitch #crafts #penpals #friends #xstitch #needlearts #thingsthatmakemesmile #spoonie #SpreadSomeSunshine
Monday, March 30, 2015
New Instagram Photo: March 30, 2015 at 05:21PM
Got some fresh air while keeping @asahsci company during gardening time!! #garden #plants #flowers #nature
Friday, March 27, 2015
New Instagram Photo: March 27, 2015 at 11:05AM
My gorgeous Star of David necklace and adorable bracelet arrived today from @everythingchicboutique I highly suggest them!! Mother's Day is coming up and their service is speedy and prices reasonable!! Please check them out! #sterlingsilver #jewelry #boutique #onlineshopping #thingsthatmakemesmile
Thursday, March 26, 2015
New Instagram Photo: March 26, 2015 at 03:08PM
To make my day even better, I received my order from @spices_of_your_life #fiberlicious How gorgeous are these silk threads?? I'm in floss heaven!!! #crossstitch #crafts #handmade #xstitch #needlearts #flosstube #floss #silk #handdyed #thingsthatmakemesmile
New Instagram Photo: March 26, 2015 at 03:03PM
Thank you so much @xstitchhaven for my winnings!!! I'm in love with the fabric, floss and adorable patterns!!!! I LOVE them all!!! #crossstitch #crafts #needlearts #flosstube #floss #xstitch #thingsthatmakemesmile
New Instagram Photo: March 26, 2015 at 10:14AM
@mobiletoybox Where is mom to sit? 😂😂😂 #bostonterrier #bostonterrierpics #bostonterrierlover #petsofinstagram
Wednesday, March 25, 2015
New Instagram Photo: March 25, 2015 at 03:49PM
Over 500!!! Thank you so much!! I'm truly honored that you all enjoy my posts!! 😘😘😘 #IGaddict #spoonie #crossstitch #crafts #love
New Instagram Photo: March 25, 2015 at 10:38AM
My son posted this! I thought it was sweet!! #Repost @matthoelzle with @repostapp. ・・・ Two of the most important things in my life!
Tuesday, March 24, 2015
New Instagram Photo: March 24, 2015 at 12:36PM
My little girlfriend came to visit! So fun- she's gotten so big since I last saw her!!! #friends #love #thingsthatmakemesmile
New Instagram Photo: March 24, 2015 at 11:23AM
#Repost @positivepenpalsproject with @repostapp. ・・・ I can't believe this happened I feel SO bad I'd hate to think a fellow #spoonie thinks they were rejected from this group it was my tremor acting up! Please can we try find them! I can't even remb their username 😔 #spooniecommunity #search
Monday, March 23, 2015
New Instagram Photo: March 23, 2015 at 01:57PM
Having second part of bone scan. First part was this morning. Then a three hour wait and one hour of pictures!!! Crazy!! #spoonie #RSD #CRPS #pots #fibromyalgia
Sunday, March 22, 2015
New Instagram Photo: March 22, 2015 at 10:22PM
#Repost @butterflyfibrogirl with @repostapp. ・・・ 💜💫Repost this Heart if You or Somebody You Know Has Fibromyalgia💫💜 #fibromyalgia #fibromyalgiaawareness #fibromyalgiahopeforacure #fibrofog #fibrosucks #fibrofatigue #fibrosisters #fibrowarrior #chronicpain #chronicillness
New Instagram Photo: March 22, 2015 at 03:47PM
Yay for fuzzy socks!!!!! @asahsci surprised me today!! An awesome gift for a #spoonie !!! #pots #RSD #CRPS #fibromyalgia #whatswrongwithmyleg #ivegotmyownwheelchair
Saturday, March 21, 2015
New Instagram Photo: March 21, 2015 at 11:22AM
#TextsOnPictures #TextOnPicture #TextsOnPhotos #TextOnPhoto #GPower Made With @TextsOnPictures @siobhanmaddison Not the same one, but I found another!!! Interesting, yes? #bostonterrier #bostonterrierpics #bostonterrierlover #petsofinstagram
Friday, March 20, 2015
Thursday, March 19, 2015
New Instagram Photo: March 19, 2015 at 06:53PM
Beautiful baby roses from my friend Trudy!!!! #roses #plants #friends #thingsthatmakemesmile
New Instagram Photo: March 19, 2015 at 01:33PM
I'm feeling slightly violated. #bostonterrier #bostonterrierlover #bostonterrierpics #squishyface #love #bestfriend #petsofinstagram
New Instagram Photo: March 19, 2015 at 01:09PM
Thanks to good friends for sending me more get well gifts!!! They know my love of #crossstitch for sure!!! #crafts #friends #thingsthatmakemesmile #spoonie #RSD #CRPS #pots #fibromyalgia #whatswrongwithmyleg
Tuesday, March 17, 2015
New Instagram Photo: March 17, 2015 at 12:25PM
Shrimp stir fry (with #salt added) made for me by @matthoelzle #yum #getinmytummy #son #love #thingsthatmakemesmile
Monday, March 16, 2015
New Instagram Photo: March 16, 2015 at 05:59PM
Stuck in traffic going home from Jefferson Hospital. Neurologist did EMG and it came out normal. The only other thing she could think of is that I have #RSD I'm going for a bone scan and then to a different teaching hospital to see an RSD specialist and see what they think. Any #RSD #spoonie out there have advice for me? #pots #fibromyalgia #whatswrongwithmyleg
Sunday, March 15, 2015
New Instagram Photo: March 15, 2015 at 03:00PM
I love giveaways!! This one is from @stitcher.linguist I am from Pennsylvania in the USA and sadly only speak English. It's not even the pretty kind like in the UK. It's straight up North East accent English. I think the colors @stitcher.linguist chose are having to do with Spring!! #crossstitch #crafts #needlearts #giveaway #wishmeluck #flosstube
New Instagram Photo: March 15, 2015 at 02:49PM
Tagged by the lovely @siobhanmaddison for #widn I am checking IG and working on my #cloudsfactoryhalloweensampler by @thepaperdiary #crossstitch #xstitch #needlearts #needleminder #flosstube #crafts I tag @butterflyfibrogirl @serinb @jillsamter and @chronic_mominator4 if you want to play!!
Saturday, March 14, 2015
New Instagram Photo: March 14, 2015 at 03:01PM
One of my students and her mom sent me a lovely get well gift!! Two beautiful cards, a hand made bracelet and two cross stitch patterns!!! Love it. #friends #crossstitch #crafts #thingsthatmakemesmile
New Instagram Photo: March 14, 2015 at 12:24PM
@asahsci Best husband EVER!!! Sorted my clothes and put them in the drawers. He even arranged things so I can get to it with the walker!!! I love you Bryan!!!! 😘😘😘 #husband #love #spoonie #standbymyside #myhero
Friday, March 13, 2015
New Instagram Photo: March 13, 2015 at 08:52PM
Thank you @mrxstitch for featuring my handy work on @thepaperdiary 's pattern!!! Very awesome!!! #crossstitch #flosstube #needlearts #xstitch
New Instagram Photo: March 13, 2015 at 02:07PM
Square four of the @thepaperdiary #cloudsfactoryhalloweensampler is done!! Onto block five!!! #crossstitch #crafts #needlearts #flosstube #xstitch #halloweensampler #floss
New Instagram Photo: March 13, 2015 at 11:14AM
Shameless plug!! My friend is starting an online business. Here is the link: http://ift.tt/1F8MKOq Please support her in her start up. Mother's Day is right around the corner!! #jewelry #clothes #kitchen #cute #fun #thingsthatmakemesmile #shopping #website
New Instagram Photo: March 13, 2015 at 10:06AM
Was tagged by @keepshiningkeepsmiling to do #sds (which I need to point out, Iz, that's mean to do to a spoonie who is regular person sick!!! Jk, I still love ya'). So, no one wants to see my red drippy nose and swollen eyes- so here's a pic of the mighty box of tissues that are my new best friend and the thermometer. Now, back to bed. Oh- whoever wants to can join in. I have no more spoons left.
Thursday, March 12, 2015
New Instagram Photo: March 12, 2015 at 04:34PM
My son @matthoelzle just took this. I think he's trying to tell me something. This pretty much sums up my days. #spoonie #igaddict #bostonterrier #bostonterrierlover #Zoey #iphone #ig
New Instagram Photo: March 12, 2015 at 04:21PM
A giant THANK YOU to @siobhanmaddison for all my goodies!!! You've made my week!!!! I'm so excited!!!! Now for this cold to go away so I can taste and smell everything! 😃💖 #friends #penpals #england #usa #thingsthatmakemesmile #fun
Wednesday, March 11, 2015
New Instagram Photo: March 11, 2015 at 11:49AM
The set is not complete- my day moisturizer is being shipped separate, but I'm in love with #benefit skin care line!! Thank you @lovekensa for recommending them!! 💞 #skincare #spoonie
New Instagram Photo: March 11, 2015 at 11:48AM
Also ordered these yummy #roastedchestnuts for protein!! #spoonie #pots #fibromyalgia #invisibleillness #whatswrongwithmyleg
New Instagram Photo: March 11, 2015 at 11:47AM
I love shopping online!!! Got my #crossstitch book recommended by @tonisantos99 !!! It's gorgeous- love it!! #crafts #xstitch #needlearts #flosstube
Tuesday, March 10, 2015
New Instagram Photo: March 10, 2015 at 09:38PM
#Bandit is also ready for bed, although the tummy rub from @matthoelzle has him mighty happy. You can tell by the tongue hanging out!!! #bostonterrier #bostonterrierlover
New Instagram Photo: March 10, 2015 at 09:36PM
#Zoey is bored and ready for bed. G'night everyone!! 🐾🐾#bostonterrier #bostonterrierlover
New Instagram Photo: March 10, 2015 at 05:24PM
Saw the #pots cardiologist today. He's taking me off the steroid- yay!!! But, he wants me to add more dietary salt. He said to eat pickles and lox-yum!!!!!!! He wants me to increase my fluids too. He also agreed with the PT that I could have #RSD . I have to ask the neurologist on the 16th. He gave me the name of a different rheumatologist who is hopefully more familiar with #fibromyalgia All in all a good visit, I think. Now, to rest and #crossstitch !! #spoonie #crafts
New Instagram Photo: March 10, 2015 at 04:04AM
3:30 AM my body (especially my left leg and foot) scream in pain and wake me. Pain meds are just starting to kick in so I will try to get back to sleep. Please help spread awareness of #chronicillness and #chronicpain #spoonie #pots #fibromyalgia #invisibleillness #butyoudontlooksick #whatswrongwithmyleg #ivegotmyownwheelchair
Monday, March 9, 2015
New Instagram Photo: March 09, 2015 at 07:52PM
Working on block four of @thepaperdiary #halloweensampler #crossstitch #crafts #xstitch #needlearts #flosstube
New Instagram Photo: March 09, 2015 at 06:01PM
Thank you Rachel @chronically_perfect for my adorable #chronicillness #knit friend!!! You are a sweetheart! 😘😘😘💞💞💜💙💚 #spoonie #pots #fibromyalgia #celiac #Raynauds #butyoudontlooksick #invisibleillness #whatswrongwithmyleg #ivegotmyownwheelchair
New Instagram Photo: March 09, 2015 at 05:58PM
#Repost @mindfullyashley with @repostapp. ・・・ #SickGirlStigma needs to end. Christina Tournant, a 17 year old girl, valedictorian of her high school and a freshman at MIT killed herself this past weekend because she was suffering from a debilitating chronic illness and felt she couldn't "keep fighting." Reading the news articles about her story honestly breaks my heart. Personally, I suffer from multiple chronic illnesses and know firsthand how they can completely change your life. Chronic illnesses can be so difficult to understand if you don't suffer from one yourself, especially as most conditions are seemingly invisible. You deal with friends, family and doctors alike questioning your sanity at times and can be made to feel like your illness isn't legitimate. Fellow chronic illness suffers hear the phrases "It's all in your head" and "But you don't look sick" all too often. Just because we don't LOOK sick, it doesn't mean we're NOT sick. Invisible illnesses are very real and can be incredibly debilitating. They can be difficult to deal with mentally as well, especially when people constantly brush you off and act as if what you're going through isn't real. Being ill can really take a toll on you. This wonderful girl deserved to get the medical attention she needed. She deserved to be listened to. We all deserve that. As terrible as it sounds, the truth is that compassion in the medical field can be hard to come by. But no one should EVER be made to feel like their illness isn't valid. Thank you to @babygottsandpots for starting this incredible campaign! If you have five minutes to spare, take that time to participate in this campaign and help raise awareness by using the hashtag. Awareness is really key 💜
New Instagram Photo: March 09, 2015 at 04:37PM
#Repost @gypsyspoonie_ with @repostapp. ・・・ Please pray & repost🙏 Our beloved Kat needs our love, prayers and support. Such a brave warrior. #prayersforkittykat
Sunday, March 8, 2015
New Instagram Photo: March 08, 2015 at 04:31PM
#framemagic Thank you @asahsci for finding #nuun for me to try!! More sodium for us #potsie people and less calories than the power drinks (and probably cheaper too!!) #spoonie #pots #fibromyalgia #celiac #invisibleillness #butyoudontlooksick #whatswrongwithmyleg #ivegotmyownwheelchair
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